On June 26, the inaugural California PANS/PANDAS Advocacy Day was held at the state capitol. It was hosted by the California Coalition for PANS/PANDAS Advocacy and Assemblymember Lowenthal, sponsor of AB2105. Families, doctors, and advocates were present to build support for the serious medical condition that can be misdiagnosed and devastating for children who have it, and for their family members.
AB2105 would increase access to life-saving medicines for treatment of inflammatory brain disorders. The bill has moved through the California legislative process this year with unanimous support, including passing the Senate Health Committee on June 12.
The biggest challenge will be getting Gov. Newsom to sign the bill. While the state senate and assembly last year passed Assembly Bill No. 907, a similar bill to AB2105, Newsom vetoed it.